Today FSID charity has changed. It has evolved. It has spread its wings to become The Lullaby Trust and I am honoured to have been asked to share this with you today. Jennie and I have been sworn to secrecy for a number of weeks now, and finally we are able to reveal the new logo!
The Lullaby Trust has been a lifeline for many, many parents. How I wish it didn’t have to be. How I wish that no parent would ever have to go through the horror and torment that my lovely friend has been through since February 2nd 2013. Since the night she found her beautiful baby girl sleeping.
Since the night where every parent’s most unutterable nightmare actually came true. When she stepped into the darkened room, expecting to hear the familiar sounds of her baby at slumber. Expected to see a little lump under the covers. Expected her hand to fall onto her daughter’s body, scoop her into her arms and nurse her through the night. Expected to have her beautiful Matilda Mae in her arms for so much longer than nine short months.
That night, Matilda Mae was taken. As Jennie says herself, a mother does not ‘lose’ a baby. A baby is ripped from her soul, from clawing fingers desperate to hold on, desperate for reality to become a dream. Desperate for eyes to open, hands to uncurl and life to go on as normal. Matilda Mae is not lost. She is simply where she does NOT belong, and the reasons for this are so unfair.
SIDS. Sudden Infant Death Syndrome. There was no reason for Matilda Mae, a happy and healthy baby, to die. There was no reason at all why Jennie should ‘lose’ her precious miracle baby. And that may be the hardest thing of all to understand. And why The Lullaby Trust is so very important.
The Lullaby Trust are dedicated towards supporting families like Jennie’s. They are dedicated towards funding research into WHY this happens, and how best to prevent it. They are dedicated towards helping families to move on towards a new pregnancy, a new baby- with their Care of Next Infant service (CONI). They are dedicated towards helping people like me, who want to help and 
support friends who have ‘lost’ babies. With the Lullaby Trust’s help, I am organising a walk for Matila Mae on May 11th. I am helping Jennie to run an online auction to raise funds, also in May. I am jumping from a plane in August! I am also involved in another ‘secret’ project with Jennie… and why?
Because the Lullaby Trust want to provide answers for Jennie, and the other mothers with empty arms. And because I cannot simply do nothing when I see a friend suffer as she is.
Jennie has asked us to write a post based on a lullaby for today’s new name launch. I am no singer so I shall not be singing mine (as Jennie did, beautifully) and mine is a little different again because it is not for Matilda, who I know is now sleeping peacefully. Mine is for Jennie, who I know may never sleep peacefully again. Jennie, this is for you.
Your dreams will fly (to be sung to the tune of When you wish upon a star)
As you close your eyes tonight
think of Tilda, shining bright.
As you call for her in sleep
your dreams will fly.
She is at peace, you need to know
and she knows you love her so.
As you close your eyes tonight
your dreams will fly.
I’m linking this post up on Jennie’s blog to help spread the word of the Lullaby Trust. Please click the badge to go over and read the other posts, inspired by Matilda Mae and all the others babies who have been taken too soon.
This is just so beautiful
Thank you xxxxx
Beautiful, heartfelt, powerful words. Just perfect xxx
Thanks lovely
xxx
Such a beautiful, moving post. I’m off to read more about The Lullaby Trust xxx
Thank you. Please share their good work
xxx
Lovely 🙂 x
Thank you!
xx
Beautiful post xx
Thanks so much
xx
So so SO powerful, Susanne. Sat here in tears. Amazing work xx
I was in tears writing it. I wish it wasn’t true!
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A Beautiful post xxx
Thank you
xx
Simply beautiful and powerful x
Thank you. I was a wreck writing it!
x
Perfect. A wonderful tribute x
Thank you so much
xx
Beautiful xxx
Thank you
xx
It reassures me Jennie has someone like you in her life. You are a very nice person. It’s so obvious.
You made me curious about this “secret project”. I’m looking forward to hearing about it. In the meantime, I will just watch you two talk about messy play because it gives me lots of good vibes !
Oh Susanne, this is so poignant and beautiful.
You are such a wonderful and supportive friend to Jennie (and I know she is to you too).
How absolutely thoughtful and selfless of you to write a lullaby for Jennie. Thank you for sharing xxxx
Simple, beautiful, perfect xx
Thank you lovely
xx
Absolutely beautifully moving and I’m not ashamed to say I sang it in my off key awful singing voice and sobbed at the same time x
I would love to hear it!
xx
Keep coming back to this and singing my lullaby x I can only do it through tears, especially today. I miss her so much and still can’t quite believe she is gone. I am not sure it will ever feel real. How can you convince yourself that your 9 month old daughter is really dead. Most of the time I just can’t believe it at all x Thank you for everything you are doing in memory of Tilda and thank you for being my wonderful friend x Can’t wait for my hug x x x
Jennie, not a day goes past where I have to remind myself that this is real. I cannot imagine how that must feel for you. I don’t know how you will make it feel real. I wonder whether this is your subconscious protecting you in some way… I just don’t know.
I can’t wait to see you too. Not long now!
xx